Life After – November 2020

Sandy called the Ambulance again the Ambos checked my vitals…

1/11/2020 (Sunday) – Still tossing and turning, arms and legs still sore. Still fatigued. Sore throat. Slept until 12:30hrs.
No appetite. Felt very ordinary all day.
 
2/11/2020 (Monday) – Still tossing and turning, arms and legs sore as. Still fatigued. Sore throat. No appetite. Feel very ordinary still. Feet, ankles, lower legs and hands have been retaining fluid since the 23/1/2020.
Going to address it with Dr Clarke (family doctor) tomorrow.

3/11/2020 (Tuesday) My birthday today…Still here *SMILE*

Still tossing and turning, arms and legs still sore. Still fatigued. Sore throat. No appetite. Feel very ordinary still. Feet, ankles, lower legs and hands are still retaining fluid. Thew up breakfast after showering this morning.
Went to see Dr Peter Allcroft – Palliative Care Team and discussed my situation with him.

Saw Dr Clarke today had a good session with her, renewed some scripts to help prevent me spewing, etc and have a strategy to reduce the fluid retention…will be interesting to see how that goes.

4/11/2020 (Wednesday) – Still tossing and turning, arms and legs still sore. Still fatigued and arose around 12:30hrs. Sore throat. No appetite. Feel very ordinary still. Still retaining fluid – started taking Apo-Frusemide to reduce fluid retention.
Stopped taking the Ventolin last night, to see if it makes a difference to my breathing.


Turns out that the Immunotherapy has caused the Pituitary Gland to malfunction which in turn caused the Adrenal Glands to stop producing the hormone Cortisol

5/11/2020 (Thursday) – Still tossing and turning, arms and legs still sore. Still fatigued arose around 16:30hrs. Sore throat. No appetite. Feel very ordinary still. Still retaining fluid – taking Apo-Frusemide to reduce fluid retention.
Stopping taking Ventolin made no difference to my breathing.

6/11/2020 (Friday) – Still tossing and turning, arms and legs still sore. Still fatigued. Sore throat. No appetite. Feel very, very ordinary.
Totally bed-ridden. Thowing up when trying to eat or after eating.

7/11/2020 (Saturday) – Still tossing and turning, arms and legs still sore. Still fatigued. Sore throat. No appetite. Feel very, very ordinary.
Still totally bed-ridden. Still throwing up.

8/11/2020 (Sunday) – Threw-up when Sandy was making breakfast (not as a result of her cooking), collapsed next to the toilet.
Sandy called the Ambulance again the Ambos checked my vitals and immediatedly put me on an intravienous Saline Drip, administered Oxygen and transported me to The Flinders Emergency where I was Triaged and admitted for Vomiting and Lethargy and treated accordingly.

9/11/2020 (Monday) – I was taken to the Oncology Ward (Ward 4 South) Room 449 where treatment continued and was being diagnosed for cause. Blood tests conducted and Saline Drip continued to be administered intravenously 24 hours.
Was still vomiting on and off and dry retching.

10/11/2020 (Tuesday) – I was given Metoclopramide (Maxalon) Treatment for Nausea and Vomiting intravieniously and still vomited after trying to eat…go figure! Saline drip was still being pushed 24 hours a day.

The Engine Room Of Ward 4 South – Oncology

More blood tests being conducted. I was given Maxalon tablets to prevent Vomiting. The Dry Retching ceased so was able to tentatively start eating meals…Hooray!!!!

11/11/2020 (Wednesday) – Saline drip was still being pushed 24 hours a day. I had a Brain MIR Scan performed at 09:00hrs to ascertain if the Cancer had metastisised into the brain and to also try and identify if any other abnormalities had occurred which may have been causing the odd behaviour (Total fatigue, weird involentary stretching, continual sickness, etc). 

Late afternoon I felt a pain across my chest and figured it may have been reflux/heart burn and mentioned it to the ward nurse…well – ECG was performed immediately to ensure I was not having a heart attack, multiple blood tests conducted and a heart specialist arrived on the scene. Next thing I know I’m scheduled for a CT Scan (another warm willy) at 21:00hrs.
Fortunately it was not a heart issue and I was treated for reflux/heart-burn. Bloody hell what an exciting day this has turned out to be.

The Endocrinologist (Dr Manodi Saranapala) explained why I was feeling so crappy over the last few weeks, and this is my very short interpretation…turns out that the Immunotherapy has caused the Pituitary Gland to malfunction which in turn caused the Adrenal Glands to stop producing the hormone Cortisol.

Consequently in my case the cortisol is not being produced as it should be and subsequently causing all there crappy events mentioned above, I have now been placed on a supplement called Hydrocortisone (Steroids) to perform this function.

The process from the Pituitary Gland to Production of Cortisol

This will be measured and maintained accordingly based on further treatment, at this stage.
And so far I have ceased vomiting and am actually functional now…man what a difference! Looks like things are getting back to a reasonable “normal”.

12/11/2020 (Thursday) – Dr Saranapala came in to check on me to see how I was reacting to the Hydrocortisone (Steroid) Treatment as I had started in the tablet form. It appeared to be doing it’s job…so all good. The Saline drip was removed aroung lunch time and I was told all things being equal I would be discharged the following morning. 

13/11/2020 (Friday) – Both the Oncoclogist and the Endocrinologist were happy with their observations and consequently allowed me to be discharged today…YAHOO!! Sandy picked me up around 10:30hrs and we were out of there… 

14/11/2020 (Saturday) – Back home, drugs being taken as per prescription and all is good.
I do feel so much better. Subsequently I am updating this blog.

2 thoughts on “Life After – November 2020”

  1. Can’t explain to you buddy how good it was to speak to you today
    You are a hero to me champ
    Your also …..
    A mentor
    A (sometimes) stand-in father
    A colleague
    But most of all a friend
    Luv ya Neil

    1. Thank you Clint, it was good catching up and I have to say it is so heartwarming to see you doing so well.
      Keep doing what you are doing – and I’m a happy man.

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