Life After – September 2020

Noticed my finger tips (Pads) are swollen, side effect of Immunotherapy treatment???

01/03/2020 (Sunday) – Headache, Sore throat, Cough, Fluid Retention in ankles and lower legs.
Start of Spring…still here.
Cycle 12 – Immunotherapy today. Met withDr Roy he said the bloods looked OK, asked how I felt and I told him that I get short of breath and really fatigued after a walk, coughing is more controlled with the Salbutomol but still phlegmy. Am more bloated and my ankles have disappeared – fluid retention.

He checked out my stomach, seemed to be OK. He said that he was not happy with my symptoms and where the cancer may be going and subsequently, ordered an Echocardiogram and full CT Scan (brain, bones, throat, chest, abdomen) to be done. 

All things being equal Immunotherapy will continue. Next treatment will be September 22. Dr Roy has prescribed Codine Linctus (cough syrup) 2 – 3 times a day to assist with controlling the cough.

Dr Roy will discuss the outcome of the Tests at next consult. Of course now it starts to play on your mind…is the cancer getting worse, becoming immune to the treatment, etc.


Woke without a headache this morning, however it manifested itself over breakfast, so much for having 10 days headache free during the past nine months

2/09/2020 (Wednesday) – Headache, Sore throat, Cough, Fluid Retention in ankles and lower legs.
Feeling a bit flat after consult with Dr Roy.
Back on the treadmill for half hour. Went for a walk along the esplanade this afternoon with Sandy and Biggles, knackered when I get home.
Just noticed my finger tips (Pads) are swollen??? Side effect of Atezolizumab – Immunotherapy drug or cancer symptom???

3/09/2020 (Thursday) – Headache, Sore throat, Cough, Ankles, lower legs and finger tips still swollen. Took Codine Linctus prior to bed last night as well as the Salbutomol. Slept a little better, still woke at dark o’clock coughing.
I have finished sorting the Blog and am going to attempt to put it up on the internet tomorrow.

4/09/2020 (Friday) – Headache, Sore throat, Cough, Ankles, lower legs and finger tips swollen.
Had a weird nightmare last night, woke up yelling “let go” as I felt someone or thing was holding me from behind taking my body out of my body…WTF.
I don’t normally dream let alone have nightmares. Uploading the blog via Transmit.

Going to Arkaba again meeting Phil and Debbie for a meal then upstairs to see “Hooked” a Dr Hook tribute band from the Gold Coast.

5/09/2020 (Saturday) – Headache, Sore throat, Cough, Ankles, lower legs and finger tips swollen. Had reasonabe nights sleep.

The Hooked show last night was pretty good. It was the band’s first gig in South Australia.
Felt pretty ordinary during the afternoon/evening.

6/09/2020 (Sunday) – Headache, Sore throat, Cough, Ankles, lower legs and finger tips swollen.
Woke without a headache this morning, however it manifested itself over breakfast, so much for having 10 days headache free during the past nine months

7/09/2020 (Monday) – Headache, Sore throat, Cough, Ankles, lower legs and finger tips swollen.
Spent most of the day trying to get the blog up and running.

The people at Green Geeks Live Chat were extremely helpful as we collectively tried to address the issue of moving the blog from the server on my laptop to their hosting platform. 

8/09/2020 (Tuesday) – Bad Headache, Sore throat, Cough, Ankles, lower legs and finger tips swollen.

Green Geeks hosting is environmentally friendly

The live chat people at Green Geeks recommended I get their gurus involved so I raised “ticket” and requested assistance from the support team. The “experts” did the heavy lifting, they were prompt, we exchanged a few emails and they resolved the issues over night. I had an email waiting for me this morning advising me the sclc-blog.com.au is now live.

Big shout out to all the Green Geek support team that assisted. I certainly recommend them to anyone looking for a very good web hosting company, they have been very helpful prompt and courteous to deal with since day dot. A few minor bits to sort, but I am hopeful that I can resolve them myself.

6 thoughts on “Life After – September 2020”

  1. Hey Neil, there’s not much I can say but for you to hang in there , constantly thinking of you and Sandy since we made contact. If there is anything I can help you with, please don’t hesitate to let me know bro. Love to you and Sandy. Wayne and Deb.

    1. Thanks Wayne, appreciate your sentiments. Sandy said if you have a spare $200,000.00 will forward bank details to you. Look forward to the Transfer ROFLMFAO 🙂

  2. Hi Neil, as always I spell your name wrong and have to correct it, you are so brave both you and Sandy, Love you and look forward to seeing you soon, hang in there and love each other as I know you do xxxx Julia

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